| Journal: | Journal of epilepsy and clinical neurophysiology |
| Database: | PERIÓDICA |
| System number: | 000299028 |
| ISSN: | 1676-2649 |
| Authors: | Silva, Tatiana Indelicato da1 Alonso, Neide Barreira Azevedo, Auro Mauro Westphal-Guitti, Ana Carolina Migliorini, Rosa Cristina Vaz Pedroso Marques, Carolina Mattos Caboclo, Luis Otavio Sales Ferreira Sakamoto, Americo Ceiki Yacubian, Elza Marcia Targas |
| Institutions: | 1Universidade Federal de Sao Paulo, Sao Paulo. Brasil |
| Year: | 2006 |
| Season: | Mar |
| Volumen: | 12 |
| Number: | 1 |
| Pages: | 41-47 |
| Country: | Brasil |
| Language: | Portugués |
| Document type: | Artículo |
| Approach: | Aplicado |
| English abstract | Seizure severity and seizure frequency reduction are the goals in the treatment of epilepsy. Up to the present, there are no validated instruments or studies emphasizing initial reliability and validity of questionnaires to measure seizure severity into Brazilian Portuguese. PURPOSE: This report describes the translation and cross-cultural adaptation of the Seizure Severity Questionnaire (SSQ), an instrument to evaluate seizure frequency and severity. CASUISTIC AND METHODS: The author conceded the original English version to Portuguese translation. Later, two independent native English-speaking teachers fluent in Portuguese translated this consensus version back into English. Comparison of the back-translation with the original English version showed only a few discrepancies, and the English and Portuguese versions were considered conceptually equivalent. Thirty patients regularly treated with temporal lobe epilepsy related to mesial temporal sclerosis answered the questionnaire. RESULTS: Twenty-two adult patients (73%) were male and mean age 37. Ten (33%) reported only auras and 18 Movements or attitudes during the seizures. Two presented Loss of consciousness. For 13 (43%) there was a long time to recuperate after the event. 12 reported Emotional effects and all patients had Body effects. The majority of patients, 28 (94%) considered their seizures extremely severe and for 23 (77%) the recuperation period was the most bother symptom. The association of seizure frequency and Nottingham Health Profile showed statistical significance for the domains: Emotional well-being (p = 0.046), Pain (p = 0.015) and Sleep (p = 0.003). CONCLUSION: This study explored the cultural adaptation of SSQ and its first results. We also assessed the correlation between seizure frequency and quality of life impact. The instrument SSQ could help to understand the seizure concern in the view of the patient |
| Portuguese abstract | O tratamento medicamentoso tem como meta principal a redução da freqüência de crises ou seu controle completo. No Brasil não dispomos de informação sobre tradução, adaptação cultural e validação de escalas que medem a gravidade de crises. OBJETIVO: Tradução e adaptação cultural da Escala de Gravidade de Crises (EGC) (Seizure Severity Questionnaire) com objetivo de avaliar o impacto da freqüência de crises. CASUÍSTICA E METODOLOGIA: A autora da escala concedeu a versão original em inglês para a tradução. Dois professores de inglês nativos realizaram a retrotradução. As versões em português e a retrotraduzida foram comparadas à original e após consenso foi obtida a versão final. Trinta pacientes em tratamento regular com diagnóstico de epilepsia do lobo temporal relacionada a esclerose mesial temporal responderam ao questionário. RESULTADOS: Vinte e dois pacientes (73%) eram do sexo masculino, com média de idade de 37 anos. Na Escala de Gravidade de Crises, 10 (33%) tiveram apenas auras; 18 (62%) apresentaram Movimentos ou atitudes durante a crise. Dois (6%) apresentaram Perda dos sentidos, 13 (43%) revelaram demora na recuperação após a crise com Efeitos mentais e corpóreos e 12 (40%) tiveram Efeitos emocionais. Vinte e oito (94%) responderam terem sido as crises extremamente graves e para 23 (77%) a recuperação após as crises foi o que mais incomodou. Observou-se uma correlação estatisticamente significante entre a freqüência de crises e os domínios do Nottingham Health Profile: Reações Emocionais (p = 0,046), Dor (p =.. |
| Disciplines: | Medicina |
| Keyword: | Diagnóstico, Neurología, Frecuencia, Convulsiones, Crisis, Gravedad, Escalas, Calidad de vida, Epilepsia de lóbulo temporal |
| Keyword: | Medicine, Diagnosis, Neurology, Frequency, Crisis, Gravity, Scales, Quality of life, Temporal lobe epilepsy, Seizures |
| Full text: | Texto completo (Ver HTML) |
